Friday, September 19, 2014

So last Wednesday I got a call from my oncologist, asking me to call her office and make an appointment to discuss the recent CT scan, she said it was urgent. When I heard this first message it was too late to call, so I waited until yesterday, I played "phone tag" with her all day, until she finally left a voice mail saying to go to the E.R. She said the CT scan had showed fracture in a bone and to go to the E.R. immediately. Coincidentally, I was a couple of blocks from the hospital when I got heard her voicemail so I went straight there. I was admitted last night and discharged this afternoon. False Alarm. My orthopedic surgeon read the CT scan and took more x-rays and said everything is in place, Thank God! I spent an awful night thinking I was going to have hip replacement and would miss my upcoming trip to Cancun in October to see my parents, this was what concerned me the most. Then in the morning when the ortho said no harm done, I shifted my worry to has the cancer spread somewhere else? and that's why the onco. referred me to the E.R.? Finally around 1 pm the onco herself came to my room and apologized, she said the radiologist who read the CT scan had called her and told her my "hardware" had fracture (from my femur rod) and that's why she sent me to the E.R. She explained that the "hardware" can make the CT's hard to read and the radiologist thought he saw fracture.
Anyway, as far as cancer goes she said I am doing great. She said the same radiologist said that the blastic lesions show improvement after treatment, so Anastrozole/Arimidex still working! Yey! So even though I spent 24 hours in the hospital worrying needlessly the bottom line is I'm NED!!! And to me as a Stage IV patient that's all it matters. Humans make mistakes and doctors and radiologists are human too!
Thank you for all your concern and support. 
Aurora

Wednesday, September 17, 2014

Today I went for my CT Scan. The doctor had originally ordered a PET scan but Medicaid wouldn't pay for it, so I got a CT scan. From what I've read they are just as accurate so hopefully it will show no progression. They said the results should be in my oncologist's office in two days. My next appointment with my doctor is not until October 5th, so I assume if I don't hear from her before then it means everything is OK.

Next time I get one I'll bring some Crystal light to flavor the contrast. It had a horrible taste and made me nauseated. I had forgotten how it felt, This feeling of being full of chemicals surging through my veins and body. When the test was done, I felt dizzy but I had to rush out of there to try and catch my public transportation ride back. Fortunately the driver was very understanding and waited for me while I used the restroom before boarding the bus. Whew!

Now, I'm back home and feeling better, trying to relax. I just hope the results are worth the stress.

 Signing out.

Aurora

Sunday, September 7, 2014

Ugh! Unfortunately I did not get a CT scan or a PET Scan last week. First, Medicaid denied the PET scan, they said it would have to be a CT scan instead.But I can't schedule the CT until I get my Zometa infusion so my Dr.'s billing office can bill for it and the $800 Share of Cost of Medicaid is covered so they'll approve the CT... and I missed my appointment for the Zometa on Friday.

Now I have the Zometa on Wed. Sept. 10th and I need for the Dr. office to process the bill as fast as they can so I can schedule the CT and also so I can fill my prescription's for the month. All these come as a result of not having a "real" insurance, because I don't qualify for "regular" Medicaid, or Obamacare and I won't qualify for Medicare until next year and even then who knows what they'll cover and how much it'll cost me out-of-pocket.

So everything seems upside down right now. Hopefully next week will be better.

Aurora